Haley Grant, 4, loves to play with her toys.
” We try to keep her life as normal as possible. Try to let her be a 4-year-old,” said Christina Grant, Haley’s mom.
Look at Haley’s smiling face and you would never know the pain she is in.
” She will frequently dislocated her knees, her ankles, most recently her wrists are starting to dislocate,” explained Grant.
Haley suffers from Elhers Dalos, a rare connective tissue disorder.
” She has had six pneumonias in two years because her lungs have flopped over on each other. She’s had kidney stones already,” said Grant.
Like a lot of girls her age, Haley wants to be a princess. Thanks to Dream Factory, she’s getting that chance.
” She’s melted all of us. She’s wiggled her way into all of our hearts,” said Kelley Skillin-Smith, secretary of Dream Factory of Portland.
It’s a group that makes dreams come true for critically and chronically ill children.
” I wanted to go out and make a difference for those who walk in shoes that I can’t even comprehend,” said Skillin-Smith.
Dream Factory of Portland is sending Haley and her family to Disney World for a week.
Students in Gorham raised money that will pay for Haley to get a princess makeover while she’s at the theme park.
” It’s going to be a week of smiles, a week of no physical therapy, no blood draws, no doctors appointments, no hospitalizations,” said Grant.
The Grant family will head to Disney World on Sunday.
For more information on Dream Factory, click here.