WATCH LIVE

WABI Continues to Document Bangor Man Battling ALS 

Joy Hollowell

Six months have passed since TV 5 has visited with the Kingsbury family in Bangor.In May of 20-09, Jim Kingsbury has allowed our camera to capture his struggles with Lou Gehrig’s disease.Joy Hollowell sat down recently with Jim and his wife Lisa, for another personal look at ALS.=========”So this is my bed,” says Lisa Kingsbury, pointing to a recliner in the living room.Lisa Kingsbury takes the night shift in caring for her husband, Jim. Nurses come in during the day, since Lisa had to go back to work. ALS has taken away so much from this family.”He can’t be alone ever, the vent has to be monitored 24-7,” says Lisa Kingsbury.+++Lisa Kingsbury says she is currently working with state health officials to find funding for long term acute care services in Maine.Jim has been on a ventilator since May. He uses a computer to talk, as well as blinks- one for yes, two for no.”I’m feeling surprised that this has now become normal life for us,” says Jim Kingsbury through his computer.Flash back to May of 2009, when we first featured the Kingsbury family. At that time, Jim had been battling the disease for about two years. Over the next year and a half, we watched him lose mobility in his neck, arms, and now his legs.”It’s the only thing he has left,” says Lisa Kingsbury.Lisa has gotten a crash course in nursing. Several times during our interview, alarms went off signifying Jim needed to have his lungs suctioned out.There are bright spots, like the couple’s four-year old son, Jack.”He wakes me up in the morning to make faces at me,” says Jim Kingsbury.Jim also stays busy on the internet and watching movies, anything to keep his mind stimulated. He’s well aware his disease is terminal, but refuses to focus on the negative.”I have always been a happy person,” says Jim Kingsbury.And still are?(blinks yes)That’s a yes.”====Lisa Kingsbury says Jim was diagnosed with ALS in July of 2007.Current research says the disease is terminal in two to five years of diagnosis.