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ALS Awareness 

Imagine losing your ability to talk, to walk and eventually all muscle functions All while knowing exactly what is happening to you.That’s what its like to live with Lou Gehrig’s disease. May is ALS awareness month.Joy Hollowell talked to a Bangor couple that’s learning each day holds new challenges, and new possibilities.”I caught it”Three-year-old Jack loves to play catch. The toddler also understands that while his dad would love to throw the ball to Jack, he can’t. Jim Kingsbury is battling Lou Gehrig’s disease.”Around the time that Jack was about to be born, I had noticed that my right hand was stiff, and I thought at first it was carpal tunnel.”At the time, Jim was working as a chef. He began physical therapy, but the pain wouldn’t go away.”Unfortunately, there’s not a test for ALS.”Which meant Jim had to undergo a series of tests, some of them extremely painful, to eliminate anything else. Finally, a year and a half later, the 47-year-old was officially diagnosed with the disease.”He started out in 2006, it was just his right arm. Just, I say that now. I didn’t say that then. Now, he can’t use his right arm at all. His left arm is very difficult for him, his speech is getting increasingly worse, his legs, he’s starting to walk spastically.”Last March, Jim had to stop working. He’s now training to use a voice box, knowing there will come a time when that will be his only means of communication.As for the obvious question, “why us?””I don’t think we ever asked that because I think the question is really, why not us? It can happen to anybody.”The Kingsburys say they’re now looking at life in moments, savoring each one for all its worth.”The Jack trap””I can’t worry about tomorrow. We gotta get through today. And i’m going to wake up the next day and say, ‘alright, here we go again.”